Went to a neurologist for my uncontrollable shaking with a list. He valiantly tossed it over his shoulder and said “anyone that brings me a list like this I handle by doing THIS.” Never have been back.
I went to a podiatrist to get fungus on my toes checked as it seems to have “spilled” onto the toes it is on. He said not to worry about it. I told him I was susceptible to systemic fungal infections and I wanted to be sure it was cared for. He asked why I am susceptible to them I told him my CD4 numbers and he rolled his eyes and said, “if you had those numbers you’d be dead. Don’t worry about it” as he walked out the door. 🙄
I went to a hematologist and he looked at my numbers and said, “I don’t believe those numbers. I don’t even know if they are yours!” He did give me iron twice, but assured me I would be dead IF those were my numbers.
I went to an Infectious Disease Dr who saw my numbers and walked me out the door because I was “too susceptible to be exposed to the germs that could be in his office.”
🤦🏻♀️
I could go on and on, but I won’t. I haven’t had good luck with specialists - even with documentation, and apparently I didn’t have luck with my Louisiana Drs who left me undiagnosed for 32 years.
I was 54 when I was finally diagnosed with Idiopathic CD4+ Lymphocytopenia and 56!when my igg antibodies plummeted and started IgIV, which are human antibodies to replace antibodies that my body cannot make. Evert4 weeks, I get 21 days supply, but the expense of ($7,000+) Dr tries to stretch it to 28 days.
Enough. So many PI patients go through similar scenarios. Very few Drs know what a primary immunodeficiency is. Can you believe that? We have 2,270 members in my Facebook group with one kind of PI or another. Drs need to know about them. Nearly all of us have to teach ER staff, specialty Drs and GP’s.
That’s all I will write about Drs.
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Nothing medical except I am sick of sinus infections and today I shook so bad I couldn’t work a puzzle.
The weather...
This last 10 days have been miserable weather wise. Just thought I would post the stats for the future. We are on the up end of it for now. Gotta love La Niña years.
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