My infusion specialist told me to take 2 Benadryl 😳 And 2 Tylenol to pre--medicate. I should be a zombie soon. I also have some numbing cream to put on the port site, but she said that it would be tender for months, about the time it heals, they puncture it again... and the chest area is tender... so... I will hold my breath, suck it up and deal with it! And be thankful I can even get help with my IgG levels.
^^^ THAT was supposed to be posted Monday - not sure what happened, but it is over! I did fine. No migraine, no major side effects on Monday - just sleepy. Was told to continue Benadry (2) for 24 hours after the end of my infusion. Tuesday was rough, Wednesday I felt like a dump truck ran me over; severe pain, confusion, awful flu like aches... just a rough day all together. I asked my immune deficiency group about it and they said, "Normal. May last a week." Great. I literally could not move for the entire day except to move from the recliner to the bed. And there I stayed.
Thursday I woke and felt shaken, but better. I don't even know how to describe it except to say, shaken. Stunned. Shocked. Recovering. All day, I took it easy and went to the sewing room and did what I felt like doing and rested the rest of the time. Easy day.
Today, I woke much better, went gung-ho to a stenciling class and half way through crashed.
I struggled through it, left, met a friend, ate lunch, took extra strength Excedrin and felt well enough to go to a quilt show... for the first 45 minutes. Struggled again. Enjoyed every moment except not knowing what to expect physically and my body randomly rebelling. Thankfully they had a place to pause and rest as needed and I got through the entire show. But... *sigh*
A description of what I feel like; the Energizer Bunny... going, going, going. Then WHACK! A fly swatter slaps me down. I am stunned... shocked... but eventually I shake it off, recover and I am an Energizer Bunny again... then I get low on batteries... waddle, run, waddle, run, waddle, collapse, waddle, run...
Will I ever figure this out? I sure hope so. Overall the infusions seem to work, it is getting past the first few days that kicks my last. I do have to learn to be patient, but patience is not my strong point... and resting definitely isn't.
The Stencil class? Awesome! Here is a stencil I made:
I am so thankful for people who donate their time to teach me more crafty stuffs. Our instructors today were meticulous, organized and very informative. I had a blast and I love my Thankful sign... and it was so stinking easy! Someone just had to teach me how to do it.
I am thankful for a place to vent as well. At least my friends and family don't have to hear it as much. My hubby does though - but I think he sees it, too. And sometimes I think we are both scared. Neither one of us knows what to expect.
I love that man! He takes such good, considerate care of me. He is a sweetheart. I am very thankful for him.
And I am thankful for the 10,000 people who have given blood so I can get my IgG plasma infusion every single month. 10,000 people for every single infusion. 😳
Have you given blood today?
And with that, I am thankful for every single day I am given.
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