Holidays On Parade 2017

 Since I have been so lax at blogging for sometime now, I will just have to back up some days and catch up with the fun stuffs that has happened while I was being a slacker.

In May of every year, our Oklahoma Home and Community Education (OHCE) group has a all day event.  We have lots of crafty types of demonstrations, taste testing, food and awesome decorations.

This year,  the theme was "Once Upon an Apron".  Everyone was encouraged to wear an apron; either a mom's apron, a treasured apron or a new apron.  We made aprons for dish soap bottles (remember those?) and decorated the tables with them.  The decorations came out absolutely adorable!  It took a while to dress all those dish soap bottles... 

And then put them all on the tables:

We had a friend who collects aprons give an apron history lesson which, 
by the way, was very enlightening!

She had some really adorable aprons!

We had lots of demonstrations on how to make different crafts:

Everyone brought aprons to display:

And as I said, we asked everyone to wear aprons...

I love the lady below!  Her name is Rose and she is always wearing a hat.  She has my heart.  If you know me, you know I love hats.  I just never seem to feel comfy wearing them - but she always has one on.  She just makes me smile.

We also had a raffle and had some awesome donations:

We had a great time.  We set it up all day on Monday, and the event is on Tuesday.  Wayne and Steve are always helping with the set up.  Wayne is our cook - he smokes meat for our event.  This year, Steve helped Wayne carry it in, slice the meat and do refills.  I think they might have even had fun visiting... but they both said learned WAY more about aprons than either of them cared to know.

 And the winners of the best aprons were:

Oldest apron (left) was over 100 years old, and cutest was on the right.  

Now don't you wish you would have been there?

Thankful - Word of the Day

4.5 weeks after my 1st infusion; with port in place I go in again.  Today I am a little nervous - my port is not completely healed, still a bit tender, I have an awful sinus infection and the first infusion gave me an awful headache.  Not looking forward to a migraine on top of a sinus headache.

My infusion specialist told me to take 2 Benadryl 😳 And 2 Tylenol to pre--medicate.  I should be a zombie soon.  I also have some numbing cream to put on the port site, but she said that it would be tender for months, about the time it heals, they puncture it again... and the chest area is tender... so... I will hold my breath, suck it up and deal with it!  And be thankful I can even get help with my IgG levels.

^^^ THAT was supposed to be posted Monday - not sure what happened, but it is over!  I did fine.  No migraine, no major side effects on Monday - just sleepy.  Was told to continue Benadry (2) for 24 hours after the end of my infusion.  Tuesday was rough, Wednesday I felt like a dump truck ran me over;  severe pain, confusion, awful flu like aches... just a rough day all together.  I asked my immune deficiency group about it and they said, "Normal.  May last a week."  Great.  I literally could not move for the entire day except to move from the recliner to the bed.  And there I stayed.

Thursday I woke and felt shaken, but better.   I don't even know how to describe it except to say, shaken. Stunned.  Shocked. Recovering.  All day, I took it easy and went to the sewing room and did what I felt like doing and rested the rest of the time.  Easy day.

Today, I woke much better, went gung-ho to a stenciling class and half way through crashed.

I struggled through it, left, met a friend, ate lunch, took extra strength Excedrin and felt well enough to go to a quilt show... for the first 45 minutes.  Struggled again.  Enjoyed every moment except not knowing what to expect physically and my body randomly rebelling.  Thankfully they had a place to pause and rest as needed and I got through the entire show.  But... *sigh*  

A description of what I feel like; the Energizer Bunny... going, going, going.  Then WHACK!  A fly swatter slaps me down.  I am stunned... shocked... but eventually I shake it off, recover and I am an Energizer Bunny again... then I get low on batteries... waddle, run, waddle, run, waddle, collapse, waddle, run...

Will I ever figure this out?  I sure hope so.  Overall the infusions seem to work, it is getting past the first few days that kicks my last.  I do have to learn to be patient, but patience is not my strong point... and resting definitely isn't.


The Stencil class?  Awesome!  Here is a stencil I made:

I am so thankful for people who donate their time to teach me more crafty stuffs.  Our instructors today were meticulous, organized and very informative.  I had a blast and I love my Thankful sign... and it was so stinking easy!  Someone just had to teach me how to do it.

I am thankful for a place to vent as well.  At least my friends and family don't have to hear it as much.  My hubby does though - but I think he sees it, too.  And sometimes I think we are both scared.  Neither one of us knows what to expect.

I love that man!  He takes such good, considerate care of me.  He is a sweetheart.  I am very thankful for him.  

And I am thankful for the 10,000 people who have given blood so I can get my IgG plasma infusion every single month.  10,000 people for every single infusion.  😳

Have you given blood today?  

And with that, I am thankful for every single day I am given. 

Sew-Therapy Fun

Well, as I said, I have been busy sewing.  Since the infusion I had 3 weeks ago, I can't tell you the difference I feel.  Some of my old self is coming back!  Specifically, my old crafty self!  Maybe since I am not fighting tooth and nail to live, I can play now!  Several things I have noticed since my IgIV infusion;  more energy!  Now that doesn't mean I don't tire out easily - I do.  But I don't struggle all day long to catch a second wind - now I can go, stop, go, rest and go then sleep.  Go wasn't much of an option before the infusion!  Secondly, this may sound odd, but I have always had extremely dry skin.  Now I was with an oily face.  EWE!  What is up with that?  I have no earthly idea, but I would guess, since my body isn't fighting everything it can act 'normally' now.  My brain fog is still gone, and I am still seeing in Technicolor... (remember those days?).  And lastly, I have actually smelled something 3 times!  WHOOT!  I will hope for more smells.  You can't imagine what life is like with no smells...

Whatever has caused the changes, I am all for it.  Maybe IgG is exactly what will make me ok again.

Ok, so here it is for my port people, one week out exactly.  The bruising is starting to fade, the steri-strips are falling off and I am fine.  Only minorly achy, but nothing major.  No Tylenol for several days now and only because I overdid things then.  Easy peasy.  

Don't worry - my boob is way out of that picture, but for some reason it doesn't feel like it.  Maybe it is because I am baring my chest... lol... 

Still don't like the port, but overall, it isn't so bad.  So that is my medical journal/update.  

And I went to a thrift store and bought this man's shirt.  I loved the colors - you know me and blues with yellows = LOVE.

I brought the shirt home and started playing with it: I cut the top off and added some fabric scraps from my living room pillows:

I cut the pocket off and moved it after decorating it.  The embroidery on the upper left was already o the pocket.  I left it, added yellow behind the original pocket and added zigzag as well:

This is the back of the finished apron.  

Fun stuffs!

Sew-Therapy

I am healing nicely from the port.  To keep my mind off of it I have to stay busy.  Ok, let's be honest, I have to stay busy all the time.  For some reason, I feel if I rest a moment I am wasting precious time.  So I am always busy; sewing, crocheting, cleaning, laundry, quilting, gardening... whatever.  I have been this way all my life, like the energizer bunny... going, going, going until I drop.  Snooze, wake and go again.

So today I am working on fair projects!  I am having a nice time doing so.  One project is a wall hanging:  

Not finished yet, but close.  The triangles on the left will be a fish with bones.  I didn't have any white embroidery floss so I cannot do that today.  All I have to do after that is bind it and add something to hang it from on the back!

I am working on a few other projects; not going to tell you yet, but I will give you a few hints:  

There are moments when I find the old me and I love it.  Since the infusion, I seem to have a few more of those moments.  I hope I am not dreaming this up.

And I have since found out that the 'rash' around my port surgery is actually a Tegaderm allergy.  Don't really know what that means, but like I said before, it is just itchy not painful.

So today was a rough day in other ways, but I just kept really, really busy.  I cannot elaborate on why, and I always feel guilty continuously asking form prayers, but we need them.  God knows right where to place those blessings.  Please keep us in prayer in the coming week.

Off to force myself to rest, but first, I will indulge in the yummy, "no sugar added" ice cream.  It really IS delicious.  

Port Implanted... Installed... Whatever...

I made it!  The port is installed.  They say it will make my life so much easier - but I hate it.  Maybe I will start to like it after I see how easy it is to use.  Maybe I will like it after I realize they don't have to stick me so many times to take 32 vials of blood anymore.  Maybe I won't like it and never will.  They are drawing that blood right under my chin!  Am I supposed to be ok with that?  I dunno, but right this minute, I don't like it.

So for those of you getting a port implanted, here is what it looks like two days later:

The port is the large area at the bottom. I don't know what they did above, but there is a tiny place they cut there.  The port is stitched, glued then steri-stripped they said.  As you can see, I had a mild reaction to the Tagaderm covering, but it is just itchy not painful.

I was AWAKE the entire time. They gave me atavan which relaxed me and something else that was supposed to make me not know what was going on, but I knew everything.  I tried to get the dweeb that placed my nasal cannula in my nose to correct it.  One side was closing off my nostril instead of IN my nostril.  He said he did, but he didn't - in fact he made it worse.  They covered my head and made me look left.  Anyone that knows me knows I am claustrophobic as heck.  I made it through probably because of the atavan, but I still had to really breathe to calm that last nerve.  But I got through it.

The most painful part was getting the Novocaine shots in my chest.  That stung like the bejeebers - but only for a few seconds.  Once that took over, I could only feel movement, pushing and shoving (?), but no pain.  Fun stuffs I tell ya!  

Next time, I want the sleepy juice to work please?

The surgical site itself was a bit painful the first day - especially to eat!  Did you realize you use chest muscles to bite food?  Eating my sandwich hurt!  Lol... I have only taken extra strength TYLENOL (not generic - it is like taking water!) to ease the discomfort.  Other than that, I haven't needed anything for pain at all.  

So it is finished, I have it and I will deal with it.

This disease is not easy to deal with.  I won't gripe or complain, just say it is a pain in the last to deal with - on so many levels it isn't even funny.

And today, I am running some errands with hubby, sewing (wait until you see what I am making!) and resting some more.  Life is good even with my health sucks.

Hope everyone has a great holiday weekend!  Mine will be great - I am staying home after our errands today.  There's your update!  Love ya!